DIY S.O.S strikes again!

Hayley Bryson, A 38-year-old Bournemouth woman battling Motor Neurone Disease came home to find her new bedroom had been decorated with rainbows by hospice staff.

The surprise came a year after staff from the Macmillan Unit in Christchurch also helped Hayley Bryson arrange her wedding to her fiancé Calvin.

Hayley was diagnosed with MND in July 2019.

Motor neurone disease (MND) destroys the nerve cells which control the muscles allowing a person to move, speak, swallow and breathe.

Hayley’s husband Calvin, 47, explained: “Last summer Hayley was walking and speaking normally and enjoying her job working with adults with learning disabilities. But she is now confined to a wheelchair and her speech is seriously impaired.

“At the end of July this year we moved into a new, more accessible bungalow in Talbot Road.

“Hayley now needs to spend much more time resting in our room and when I looked at the blank white walls I wondered what I could do to make them more interesting for her.”

Calvin continued: “The team at the Macmillan Unit in Christchurch are a lifeline to us, so I called and asked if they could help me find someone who could paint some rainbows and clouds in the bedroom. They said: “Leave it with us!”

Angie Brooks, the Multi Disciplinary Team Facilitator at the unit, said: “I knew Lucy Short our Volunteer Co-Ordinator is a fantastic artist and Lyn New on our Day Centre Staff is also amazing at painting, so I sent an email and quickly had them and other volunteers offer to help too.”

A few days later – and just two days before Hayley was due to move into her new home –  the team turned up and got to work.

“We had to do it quickly as Hayley wanted to move in asap, so that weekend was the only window of opportunity,” said Angie.

“On the Sunday, Neal Williams (Trust Secretary) Barry Wilson (Community and Events Fundraiser) Lynne Williams (Volunteer from HSBC) and I, headed around there to do the base layers of painting and put the glitter on the walls. Then on Monday I took Lucy to draw the rainbows, clouds and hot air balloons and on Tuesday Lyn painted them. It was like DIY SOS strikes again!”

Calvin said: “When Hayley came in and saw the room brightly coloured with rainbows, balloons and even glitter, her face lit up and she squealed with joy.”

Angie added: “Seeing the pleasure on Hayley’s face when we did the big reveal was very moving. We are all so pleased to have been able to give her a bedroom she enjoys spending time in.”

Hayley Bryson who has Motor Neurone Disease, was overjoyed to discover staff from the Macmillan Caring Locally team had decorated her new bedroom with her favourite rainbows.

Angie and Jane Martin from the unit also came to the rescue last year when Hayley and Calvin were planning their wedding at Poole Guild Hall.

Angie said: “The Unit asked if I could help with trying to arrange a VW Campervan to take the couple to their wedding as I used to own a VW wedding vehicle business.

“I contacted somebody I knew who was still in the business who agreed to do it at a reduced cost, which was paid for by our charity – Macmillan Caring Locally.

“I also help manage our wonderful team of volunteers and contacted them to see if we could offer any free services and a photographer came forward.

“Both myself and Jane attended the ceremony. We were both so happy to play a part in making sure Hayley and Calvin had the best day ever.”

Calvin said: “Macmillan Caring Locally has helped us in so many ways, from everyday living support, to even helping us get married.

“Words can’t express how much we appreciate them all.”

List of pharmacies 

 Pharmacy name and address

Phone Number

100 hour pharmacy

 Locality

Asda Pharmacy

St Pauls Road, Bournemouth,BH8 8DL

01202 298900

Yes

Bournemouth East

Castle Lane Pharmacy
482 Castle Lane West Bournemouth, BH8 9UD

01202 772110

Yes

Bournemouth West

Ferndown Pharmacy
487 Ringwood Road, Ferndown, BH22 9AG

01202 892666

Yes

East Dorset

Tesco Extra Pharmacy
Yarrow Road, Mannings Heath Poole, BH12 4NX

01202 457447 or 01202 367447

Yes

Parkstone

Asda Pharmacy
West Quay Road, Poole, BH15 1JQ

01202 207000

Yes

Poole Central

Equipment – www.redcross.org.uk Is useful for wheelchairs and other equipment

Guide for people nearing end stage of life : https://intranet.rbch.nhs.uk/uploads/palliative/documents/What-to-Expect.pdf

Brief Drugs List for GPs

 

Pain/breathlessness:

Morphine sulphate 2.5-5mg SC PRN (10mg in 1ml injection)

(alternative if taking PO or eGFR<30 – Oxycodone 1 – 2.5mg SC PRN (10mg in 1ml injection))

[Please take background opioid into account when prescribing doses for anticipatories]

Anxiety/distress:

Midazolam 2.5-5mg SC PRN (10mg in 2ml injection)

Secretions:

Glycopyrronium 200mcg SC PRN (600mcg in 3ml injection)

(alternative for secretions: Hyoscine Butylbromide 20mg/ml injection)

Nausea :

Levomepromazine 6.25mg SC PRN (25mg in 1ml injection)

(alternative for nausea: Haloperidol 1.5mg SC PRN (5mg in 1ml injection)

Water for injection

Dexamethasone 3.3mg SC OD-BD (equivalent to 4mg PO) if risk of steroid withdrawal/Addisons during terminal phase.

Day/Time Example Timetable
Monday - AM

9am MMU Ward Hand over; 9:30am Tour of MMU

10m Consultant Ward Round, MMU

Monday - PM

12pm Ward Nurses - syringe driver administration (treatment room)

1:30 Nursing Handover – MMU (ward office)

MMU – Admission Assessment(s) with ward doctor

Tuesday - AM

9am Ward Hand over

9:20am Referrals Meeting on MMU

10am Community visiting with Specialist Nurse

Tuesday - PM

12:30 Journal Club – MMU (doctors office)

2pm Introduction to Patient and Family Support Team

3pm Introduction to Welfare and benefits Advisor

Wednesday - AM

9am Ward Hand over

9:20am Referrals Meeting on MMU

10am Consultant ward round - MMU

Wednesday - PM

2pm Doctor/Nurse Home Visit with Specialty Doctor

Thursday - AM

9:15am Multi-Disciplinary Team Meeting on MMU

Thursday - PM

2pm Introduction to Palliative Rehabilitation with Physiotherapist

3pm Introduction to Complex Discharge Planning in terminal illness

Friday - AM

Hospital Palliative Care Team Ward Visits

Friday - PM

2pm Introduction to Personalised Care Plan for the Last Days of Life with End of Life Care Nurse

4pm Debrief / sign off